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I’m off…

…on holiday! Tomorrow morning P and I will be boarding our flight to Gran Canaria. Eeee, we’re so excited! I’ll be posting photos to my Instagram and Tumblr while I’m away, so don’t forget to follow me...

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I am sick, my sickness is not me

We’re home! Paul and I had an amazing time on holiday, although it has taken me a little longer to recover (a weird concept I know) and get back into a routine than I expected. I’ll be writing a post...

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Drop out

Source: Google images I have to begin this post by sending my apologies for not posting last week. A combination of busy days (where I did too much) and “bad” days meant I wasn’t able to get the post I...

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I’ll be waiting…

I thought I’d share a little Spoonie wisdom with you today, courtesy of Siri. Love Katie x  

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Fatality or Fighter

This past week my health has been terrible. After a bright start, on Monday, I’ve been on a downward spiral knocking into everything on my way down. I’ve felt completely drained of energy. My...

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Spiralling: An update on our favourite chronic fighter

It seems like the beginning of all my blog posts begin this way: Katie has been very sick. In fact, it’s quite possible that she’s never been this sick before, and that really is saying something. The...

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The Big Chop

If you follow me on Instagram or Twitter then you’ll probably know that I recently lost something I love… my long hair. I have been growing my hair ever since I can remember and in the last two years...

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Housebound: An Update

Housebound is a strong, and negative, word but it is a realistic description of Katie’s life, at the moment. Her sickness has regressed to a point where she’s only awake for a few hours a day. In those...

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My 15 minutes of fame

James Martin with Paul and I. James presents the show, and interviewed P and I. In September this year, Paul and I were given the opportunity to be part of a BBC programme called Operation Meet the...

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Change is possible, it’s in your hands

It seems like I start every blog post with an apology these days. I have so much I want to write and share, my brain is always working over-time, but it’s difficult to get it onto a page or screen....

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